We have a lot of health records in the family, often just for monitoring health as we grow older. Is there a good system that allow storing and organising this info. Maybe also allowing notes, reminders?
I am there right now, tried every open source project about health records, they all either suck or just not appropriate for personal use (ie meant for hospital use)
Recently a new project came out and it is the only one that is actually usable, and will possibly get really good.
You should try all the options for your self:
Thanks for the list. I too have been investigating PHRs (Personal Health Records), and I am glad to see more and more interest in this space.
MediKeep looks interesting, and hopefully we’ll see connections with some of the major EHRs, so we can import our data.
My dream is to be able to import my data, modify it, then send out changes back to my providers. I am shocked at how much out of date or wrong information is in my records from my primary care!
Some more to add to the list:
- Mere Medical - This is a PWA with no server component, which is kinda cool, although that meant synchronizing between devices does really exist. It was able to import from my Primary Care which uses Cerner (although I had to register as a developer with Cerner to get an API key), however, it couldn’t do very many useful things with the data. Having a bunch of “documents” wasn’t that helpful
- GNUHealth - seems dead
- Kailona - I haven’t tried this yet. Seems a bit complicated, and looks like you have to set up your own FHIR Server?
- Medplum - I haven’t done much investigation yet. It doesn’t seem to be a PHR, but maybe something to build on?
I haven’t tried it yet, but had a similar question recently and found this: https://github.com/ikarakas/HealthStash
If you try it out, please leave some comment here on how it worked out. I’m just too busy (okay, procrastinating) to set it up at the moment…
I wish there were screenshots
Yeah, same. Or a demo instance. But if you install and test, you can take some screenshots and contribute to the repo 😉
(Well, so could I… but… some other time)
Looks very interesting. But as others noted, still too young, only two releases in 3 months and 1 person. Certainly to keep an eye out. The MIT licence worries me too. I always add the licence in the criteria ;-)
v0.0.7, i.e. who wants to be a bug catcher 😅
I use Track & Graph from F-Droid for a similar purpose. I noticed pretty quickly that the data I want to track just isn’t generic enough to find a tailored app for it. So I setup several reminders through the app to enter the various measurements at set points in time each day and get a nice graph to dislay it.
I have no experience with it, but this promises local storage of health records: https://github.com/fastenhealth/fasten-onprem
Fetched it. Started it. Did a really nice job fetching my whole health record from insurance co & has a wide array of compatible providers. Decent presentation of repeated test results. It’s got a bunch of areas “not implemented yet,” but it’s a decent way to visualize the records. Probably even better if you have health records from multiple providers.
I’ve used it. I like how it can show trends in test results too.
I too am interested in an automated system taking data from things like smart rings/watches, ideally with home assistant integration. Do you mean like basic note taking? something like Joplin could be used for that. I use it extensively. It has a to do checkbox function, which you could use as a reminder, though it doesn’t pop up. You’d have to look at it. I think for reminders etc. you’d perhaps be looking at calendar software, perhaps next cloud, which also includes notes.
I’ve seen this haven’t tried it out though
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Components of GNU Health, perhaps?
Nextcloud Health?
Edit: Appears not not do the job after a dig. Maybe Gadgetbridge (if you’re pulling in fitness trackers)>Influx?
Paper notebook for each person, really the simplest, unless you have continuous monitoring or something uploading data automatically. Otherwise, for stuff like weight and BP, the actual measurements are the main hassle and computers won’t save you any time compared to that.
Added: for pills, timercap.com bottle caps are brilliant. They have an LCD display saying how it has been since the cap was last taken off the bottle. It eliminates the problem of forgetting whether you have already taken your pill.
Otherwise, generally, as always: https://biggaybunny.tumblr.com/post/166787080920/tech-enthusiasts-everything-in-my-house-is-wired
A friend of mine is building something like that. You scan all the documents and you can set reminders, it does summaries and proposes actions and a buck of other really neat stuff It’s ai. I think it’s a good use case. But the ai means it has to call a server with the information, so I can’t get past that.
absolutely, none of that is going past my router.
But the ai means it has to call a server with the information, so I can’t get past that.
That just means they need to ship the model and a way to run it locally. I’d love that, and wouldn’t give a shit if it took a long time to run on my hardware for something like that
Yeah, that’s true I guess. I’m using ai from protona lot for my complicated medical conditions and it’s helpful, still would be better to have it local. Especially if it had good features.
You could build your own spreadsheet using LibreOffice Spreadsheets.
I’ve been meaning to do it because my diet doesn’t change much, and it would just be easier to track it myself.
